Who can build a Data or Biospecimen Repository?

Answer

Data and/or biospecimen repositories, registries, or banks may be maintained by:

• An investigator or department within the University of Illinois Urbana-Champaign
• An external investigator or institution
• A sponsor (industry, government agency, or non-profit organization)

Organizers of a repository control access to data and/or biospecimens. It is important that the management of the repository include physical and procedural mechanisms for the secure receipt, storage, and transmission of the data and/or biospecimens.